TAPS Support Foundation

stichting taps support foundation twin anemia polycythemia sequence twins

About the TAPS Support Foundation

Founded in 2020, the TAPS Support Foundation is dedicated to changing the world of monochorionic twins.  Starting with funding research into Twin Anemia Polycythemia Sequence and connecting and supporting patients diagnosed with this disease, the foundation is led by TAPS parent Stephanie Ernst.

They provide free resources online for TAPS patients, run an evidence-based and moderated Facebook group, and actively raise awareness of this rare disease through fundraising efforts, awareness campaigns, and outreach programs.
Discover more about them here.

For media enquiries regarding the Twin Run or The TAPS Support Foundation please visit our press page.